More than Tremor - Essential Tremor

MORE THAN

TREMOR™

Essential tremor (ET) is the most common movement disorder, yet the experiences of people living with ET are often overlooked, under-appreciated or, worse yet, normalized.

ET can have a deep and far-reaching impact on the everyday lives and well-being of individuals, as well as their families and communities.

If any of this sounds familiar -
you are not alone

Simple Tasks

You may be unable to perform simple everyday tasks.

Medications

You may have tried medications that haven’t provided you with enough relief.

Everyday Tasks

You may have needed to develop a routine and workarounds for everyday tasks.

More than Tremor

6 Videos

Allison's Story

Allison's Story

1:02

More Than Tremor: Kelly’s Story

More Than Tremor: Kelly’s Story

1:04

Mark's Story

1:16

Allison Applying Makeup

Allison Applying Makeup

1:13

Julie, A Caregiver's Story

Julie, A Caregiver's Story

2:04

Kelly kitchen Workarounds

Kelly kitchen Workarounds

1:43

Hear from community voices

Kelly

Meet Gramma Kelly! She’s a children’s book author, literacy advocate and self-professed book freak. She’s also living with essential tremor and in this video, she shares her reality with ET.

Kelly

Meet Gramma Kelly! She’s a children’s book author, literacy advocate and self-professed book freak. She’s also living with essential tremor and in this video, she shares her reality with ET.

Kelly

Meet Gramma Kelly! She’s a children’s book author, literacy advocate and self-professed book freak. She’s also living with essential tremor and in this video, she shares her reality with ET.

Brianna

"By openly sharing my journey with ET, my goal is to motivate others to embrace and express their distinctive experiences with this condition."

Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. Learn more about Brianna’s essential tremor story, and her ET Response Project.

Brianna

"By openly sharing my journey with ET, my goal is to motivate others to embrace and express their distinctive experiences with this condition."

Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. Learn more about Brianna’s essential tremor story, and her ET Response Project.

Brianna

"By openly sharing my journey with ET, my goal is to motivate others to embrace and express their distinctive experiences with this condition."

Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. Learn more about Brianna’s essential tremor story, and her ET Response Project.

Helen

"My goal is to motivate others to speak up. I know far too many people who have become isolated or whose careers have ended because of ET's impact. It shouldn't be this way. We need more empathy and understanding."

Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected. And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of essential tremor. Learn more about the Connecticut ET Support Group.

Helen

"My goal is to motivate others to speak up. I know far too many people who have become isolated or whose careers have ended because of ET's impact. It shouldn't be this way. We need more empathy and understanding."

Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected. And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of essential tremor. Learn more about the Connecticut ET Support Group.

Helen

"My goal is to motivate others to speak up. I know far too many people who have become isolated or whose careers have ended because of ET's impact. It shouldn't be this way. We need more empathy and understanding."

Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected. And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of essential tremor. Learn more about the Connecticut ET Support Group.

Allison

Meet Allison, an optimist, swimmer and ice cream enthusiast. She is also one of about 7 million people in the US who live with essential tremor. In this video, Allison shares her approach to pouring a drink while living with ET.

Allison

Meet Allison, an optimist, swimmer and ice cream enthusiast. She is also one of about 7 million people in the US who live with essential tremor. In this video, Allison shares her approach to pouring a drink while living with ET.

Allison

Meet Allison, an optimist, swimmer and ice cream enthusiast. She is also one of about 7 million people in the US who live with essential tremor. In this video, Allison shares her approach to pouring a drink while living with ET.

Donald

"My hope is that people will understand that ET is a real medical condition and impacts all aspects of a person's everyday life."

Completing daily tasks such as eating, writing and getting dressed are challenges that people with essential tremor face daily. ET Awareness Champion, Donald, knows this all too well, experiencing his first symptoms of tremor in his teens. He now works to raise awareness through his writing and filmmaking. Check out his documentary, STILL, all about his life with ET.

Donald

"My hope is that people will understand that ET is a real medical condition and impacts all aspects of a person's everyday life."

Completing daily tasks such as eating, writing and getting dressed are challenges that people with essential tremor face daily. ET Awareness Champion, Donald, knows this all too well, experiencing his first symptoms of tremor in his teens. He now works to raise awareness through his writing and filmmaking. Check out his documentary, STILL, all about his life with ET.

Donald

"My hope is that people will understand that ET is a real medical condition and impacts all aspects of a person's everyday life."

Completing daily tasks such as eating, writing and getting dressed are challenges that people with essential tremor face daily. ET Awareness Champion, Donald, knows this all too well, experiencing his first symptoms of tremor in his teens. He now works to raise awareness through his writing and filmmaking. Check out his documentary, STILL, all about his life with ET.

Diann

"My goal is to ensure that no one with ET feels isolated or alone. By working together, we can change the way the world understands ET."

Diann Shaddox, is an award-winning author and steadfast advocate for people living with essential tremor. At first, Diann hid her own shaking hands, feeling embarrassed, angry, and ashamed. It was only through her writing that she found she wasn’t alone and felt empowered to take a stand. This year marks the 10-year anniversary of the Diann Shaddox Foundation for Essential Tremor Research focused on raising awareness and advancing research for ET.

Diann

"My goal is to ensure that no one with ET feels isolated or alone. By working together, we can change the way the world understands ET."

Diann Shaddox, is an award-winning author and steadfast advocate for people living with essential tremor. At first, Diann hid her own shaking hands, feeling embarrassed, angry, and ashamed. It was only through her writing that she found she wasn’t alone and felt empowered to take a stand. This year marks the 10-year anniversary of the Diann Shaddox Foundation for Essential Tremor Research focused on raising awareness and advancing research for ET.

Diann

"My goal is to ensure that no one with ET feels isolated or alone. By working together, we can change the way the world understands ET."

Diann Shaddox, is an award-winning author and steadfast advocate for people living with essential tremor. At first, Diann hid her own shaking hands, feeling embarrassed, angry, and ashamed. It was only through her writing that she found she wasn’t alone and felt empowered to take a stand. This year marks the 10-year anniversary of the Diann Shaddox Foundation for Essential Tremor Research focused on raising awareness and advancing research for ET.

Mark

Mark

Mark

Jillian

"I was embarrassed for a long time and tried to hide the tremors. Now, I have chosen to stand proudly in the spotlight, and shake for all to see, with the hope that people watching me will think differently the next time they meet someone who shakes."

ET Awareness Champion, Jillian, admits that she used to skip school talent shows and plays because of her shaking hands. Now, she educates others about essential tremor during appearances and speeches as a pageant contestant. Learn more about Jillian’s awareness and community service activities.

Jillian

"I was embarrassed for a long time and tried to hide the tremors. Now, I have chosen to stand proudly in the spotlight, and shake for all to see, with the hope that people watching me will think differently the next time they meet someone who shakes."

ET Awareness Champion, Jillian, admits that she used to skip school talent shows and plays because of her shaking hands. Now, she educates others about essential tremor during appearances and speeches as a pageant contestant. Learn more about Jillian’s awareness and community service activities.

Jillian

"I was embarrassed for a long time and tried to hide the tremors. Now, I have chosen to stand proudly in the spotlight, and shake for all to see, with the hope that people watching me will think differently the next time they meet someone who shakes."

ET Awareness Champion, Jillian, admits that she used to skip school talent shows and plays because of her shaking hands. Now, she educates others about essential tremor during appearances and speeches as a pageant contestant. Learn more about Jillian’s awareness and community service activities.

Kiahana

"The journey of life is never a straight path. Here's to seeing what the future holds and spreading awareness of essential tremor."

Kiahna is a veterinary office manager and artist. She also lives with essential tremor. While she has found some relief with medication, there are still days when her hands shake, her arms jerk, or she spills or breaks things.

Kiahana

"The journey of life is never a straight path. Here's to seeing what the future holds and spreading awareness of essential tremor."

Kiahna is a veterinary office manager and artist. She also lives with essential tremor. While she has found some relief with medication, there are still days when her hands shake, her arms jerk, or she spills or breaks things.

Kiahana

"The journey of life is never a straight path. Here's to seeing what the future holds and spreading awareness of essential tremor."

Kiahna is a veterinary office manager and artist. She also lives with essential tremor. While she has found some relief with medication, there are still days when her hands shake, her arms jerk, or she spills or breaks things.