MORE THAN TREMOR
Essential tremor (ET) is the most common movement disorder, yet the experiences of people living with ET are often overlooked, under-appreciated or, worse yet, normalized.
ET can have a deep and far-reaching impact on the everyday lives and well-being of individuals, as well as their families and communities.
Kelly
Meet Gramma Kelly! She’s a children’s book author, literacy advocate and self-professed book freak. She’s also living with essential tremor and in this video, she shares her reality with ET.
Allison
Meet Allison, an optimist, swimmer and ice cream enthusiast. She is also one of about 7 million people in the US who live with essential tremor.In this video, Allison shares her approach to pouring a drink while living with ET.
Brianna
Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. To learn more about Brianna’s essential tremor story, and her ET Response Project, click the link below.
Donald
Completing daily tasks such as eating, writing and getting dressed are challenges that people with essential tremor face daily.
ET Awareness Champion, Donald, knows this all too well, experiencing his first symptoms of tremor in his teens. He now works to raise awareness through his writing and filmmaking. Check out his documentary, STILL, all about his life with ET.
Jillian
ET Awareness Champion, Jillian, admits that she used to skip school talent shows and plays because of her shaking hands. Now, she educates others about essential tremor during appearances and speeches as a pageant contestant.
Learn more about Jillian’s awareness and community service activities
Diann
ET Awareness Champion, Diann Shaddox, is an award-winning author and steadfast advocate for people living with essential tremor.
At first, Diann hid her own shaking hands, feeling embarrassed, angry, and ashamed. It was only through her writing that she found she wasn’t alone and felt empowered to take a stand.
This year marks the 10-year anniversary of the Diann Shaddox Foundation for Essential Tremor Research focused on raising awareness and advancing research for essential tremor.
Helen
Essential Tremor Awareness Champion, Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected.
And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of essential tremor. Learn more about the Connecticut ET Support Group.
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